On Saturday, I posted about making the right choice and I just read another blog who just caused an expectant mother to make that right choice. Read how litte Ella Grace changed the lives of a special family who just found out there unborn daughter has Down syndrome. This story is exactly what I wished for.
Ella Grace With The Pretty Face
Tuesday, February 26, 2008
DS Family Network Playdate
Ruby, I love those Baby Legs! She is so adorable!
Logan and Noah (13 yrs)
Our little ones, Logan, Aaron (5 months), Ruby (9 months-4 days older than Logan), Hendrick (3 yrs) Also pictured, Aaron's older brother, Christian and their mom, Debbie.
Logan and Aaron
Logan and Noah (13 yrs)
Our little ones, Logan, Aaron (5 months), Ruby (9 months-4 days older than Logan), Hendrick (3 yrs) Also pictured, Aaron's older brother, Christian and their mom, Debbie.
Logan and Aaron
Saturday, February 23, 2008
Making the Right Choice
About the Down Syndrome Belongs Video in my last post:
I wish there was a way that I could make everyone aware of how wonderful kids with DS are and how much they deserve to be born so that Doctors and expectant parents can make the right decision when faced with the diagnosis of Down syndrome. It makes me sad when I think about 90+% of DS pregnacies being ended and many Doctors are actually encouraging this. I am so thankful that my doctor never encourages ending the pregnancy. That makes me feel like I chose the right doctor. He also had a very positive outlook for us when he delivered the diagnosis. He told us Logan was a blessing in disquise and that everything would be ok. He also told us how he has personally been touched by a nephew with Down syndrome. At the time, we were in shock from everything, but I look back and am very thankful that he handled the situation so perfectly. I have heard stories from other parents where their doctor's were not so encouraging.
I wish someone would have told me about children with Down syndrome before I had Logan. I wouldn't have been so devistated at first.
For now, I guess the best thing I can do is to take Logan every where with me and include him in all of the activities that typical kids participate in. We take Logan every where we go and I think he already has touch a lot of people and changed their minds about DS. They have discovered Logan is just like any other baby.
I wish there was a way that I could make everyone aware of how wonderful kids with DS are and how much they deserve to be born so that Doctors and expectant parents can make the right decision when faced with the diagnosis of Down syndrome. It makes me sad when I think about 90+% of DS pregnacies being ended and many Doctors are actually encouraging this. I am so thankful that my doctor never encourages ending the pregnancy. That makes me feel like I chose the right doctor. He also had a very positive outlook for us when he delivered the diagnosis. He told us Logan was a blessing in disquise and that everything would be ok. He also told us how he has personally been touched by a nephew with Down syndrome. At the time, we were in shock from everything, but I look back and am very thankful that he handled the situation so perfectly. I have heard stories from other parents where their doctor's were not so encouraging.
I wish someone would have told me about children with Down syndrome before I had Logan. I wouldn't have been so devistated at first.
For now, I guess the best thing I can do is to take Logan every where with me and include him in all of the activities that typical kids participate in. We take Logan every where we go and I think he already has touch a lot of people and changed their minds about DS. They have discovered Logan is just like any other baby.
Wednesday, February 20, 2008
Monday, February 18, 2008
Logan's Nine Month Stats
Weight: 22 lbs 15.5 oz (80% Regular Chart) (Greater than 90% on DS Chart) He was at 23 lbs 10 oz before RSV.
Length: 27 inches (10% Regular Chart) (50% DS Chart)
Head: 44 cm (15% Regular Chart)
His appointment went pretty well. We discussed a sleep study, which we decided we will do if it's still an issue when he can no longer sit in his car seat to sleep at night. Then, the doctor also asked a list of questions about Logan's gross and fine motor and intellectual development. Even though I am aware of where he is at for his age, I was very disappointed because the doctor went through the whole list and I had to answer no to every question. Like, "does Logan use his thumb and index finger to pick up small objects. (he is just beginning to reach out for stuff, but rarely actually grabs them with his whole hand!!) No, No, No... Let me say, I really like Logan's doctor and I'm not going to hold this against him, because I think he felt bad afterwards. I think he realized how rediculous it was to ask me all of that. I am sure he had to (maybe hoping I would say yes to something). Unfortunately, he made reality hit me...sometimes I get in a mode where I just feel like nothing could bother me, and then WHAMM! The sad feelings hit, but they will pass. His smiles tonight made me forget.
Length: 27 inches (10% Regular Chart) (50% DS Chart)
Head: 44 cm (15% Regular Chart)
His appointment went pretty well. We discussed a sleep study, which we decided we will do if it's still an issue when he can no longer sit in his car seat to sleep at night. Then, the doctor also asked a list of questions about Logan's gross and fine motor and intellectual development. Even though I am aware of where he is at for his age, I was very disappointed because the doctor went through the whole list and I had to answer no to every question. Like, "does Logan use his thumb and index finger to pick up small objects. (he is just beginning to reach out for stuff, but rarely actually grabs them with his whole hand!!) No, No, No... Let me say, I really like Logan's doctor and I'm not going to hold this against him, because I think he felt bad afterwards. I think he realized how rediculous it was to ask me all of that. I am sure he had to (maybe hoping I would say yes to something). Unfortunately, he made reality hit me...sometimes I get in a mode where I just feel like nothing could bother me, and then WHAMM! The sad feelings hit, but they will pass. His smiles tonight made me forget.
Sunday, February 17, 2008
All about Devin
To understand this post, you need to know that Devin is completely in love with all things High School. He LOVES the high school pep band and pretending to run through a poster past the cheerleaders and out onto the gym floor. He's always reinacting everything he sees as High School events...and we go to ALOT of them! (his Dad coaches several sports)
Saturday, February 16, 2008
Life back to "normal"
I guess I can now say that life is back to our kind of normal. I think Logan is off oxygen for good now. He will have his 9 month check-up on Monday. I plan to ask about a sleep study (to check his degree of sleep apnea). Logan REALLY impressed me today...he is opening his mouth for solids and actually seems interested and hungry for them! Before now, I would have to kind of force feed them and he would rarely finish a whole serving. When he was in the hospital we stopped the solids and since then it was starting to look like it was going to take him a LONG time to get back to where we were. He also lost a pound while he was sick and I have been worried about his appetite. My milk supply got very low when he wasn't eating much. I hope that on Monday we will find out that he gained that pound back. (good thing he had some to lose)
Thursday, February 14, 2008
Happy Valentine's Day!
A Valentine's Day wedding for a couple with Down syndrome.
Click here to read their story and watch their video
Click here to read their story and watch their video
Wednesday, February 13, 2008
Logan is 9 months!
Logan is feeling much better. He has been off oxygen for 24 hours now so we are crossing our figures that he won't go back.
At nine months he is now sitting for a few minutes at a time (if he wants to). He has stopped rolling since he was sick, but hopefully he will be back at it soon, and we are seeing many more smiles as he is feeling better.
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