Life back to "normal"

I guess I can now say that life is back to our kind of normal. I think Logan is off oxygen for good now. He will have his 9 month check-up on Monday. I plan to ask about a sleep study (to check his degree of sleep apnea). Logan REALLY impressed me today...he is opening his mouth for solids and actually seems interested and hungry for them! Before now, I would have to kind of force feed them and he would rarely finish a whole serving. When he was in the hospital we stopped the solids and since then it was starting to look like it was going to take him a LONG time to get back to where we were. He also lost a pound while he was sick and I have been worried about his appetite. My milk supply got very low when he wasn't eating much. I hope that on Monday we will find out that he gained that pound back. (good thing he had some to lose)

Home care

Logan has been going on and off of oxygen since we got home. He went almost 24 hours without it, but last night and this morning he needed some help again. We went back to the doctor yesterday and were sent home with yet another machine...a much smaller one though. We now have to give him nebulizer treatments of a steroid to hopefully relax his airway and possibly get rid of that chronic cough he has had since October. I am a bit overwhelmed (that's an understatement) with Logan's regiment of treatments. The one nice thing about being in the hospital was that the nurses could give the meds and I could just call them if Logan's monitor was going off. Now, I am left to deal with it all on my own. I still worry that there are underlying problems with Logan that we are missing...but thinking about that too much is not good for any of us.

Home at last!

At the hospital this morning we saw yet another doctor and this one felt that if I was comfortable taking care of Logan at home, he would let us go. So, Logan is on oxygen 24 hours a day at home. My job will be to monitor is O2 and hopefully wean him off of it slowly. I am so glad that we didn't have to wait for him to go through the day time without it. I think that would have kept us in the hospital most of next week.
Finally, I can post some new pictures!
SO glad to be home!! Logan's smile as I was loading him into our van was priceless!

Logan cozy at home.

Really Bad Timing

This morning I got a call from Children's Hospital in Milwaukee saying they could get Logan in tomorrow for his ABR hearing test!! We actually made it to the top of the cancelation list and I had to say no! Of course he couldn't go because he is sick...but for this test he has to be perfectly healthy with no fluid in his ears. Now I have to hope that his ear infection clears up fast and he gets better before they call again....if that even happens. We are scheduled for April.

This morning the doctor said Logan has to be off oxygen completely for 12 hours before we can go home. He is still on it right now. :(

Day 5: Not much improvement

Logan's oxygen was lowered yesterday, but when night came he ran a fever and couldn't stop coughing. By morning his O2 needed to be raised up again and they have started deep suctioning him every 4 hours again. He now also has an ear infection.
Again today, when he had just had all his meds and had been suctioned, he was pretty happy and he played for a couple of hours. Hopefully the suctioning will stop his cough tonight and he will get a good nights sleep.
Please pray that we are home by this weekend.

Day 4: Still on oxygen

Last night and this morning Logan's oxygen had to be turned up pretty high, but tonight, thankfully, they are starting to bring it back down. He still needs it all of the time, but he has only needed to be suctioned once today!!! What a relief! I couldn't take much more of that. Also, we both slept much better last night because his O2 alarm didn't go off at all (because they had the O2 cranked up). The doctors are currently keeping a close eye on his ears because he has had a lot of drainage out of one and even some blood has been coming out.
The good news is that Logan was awake AND happy for a few hours today in the middle of the day! He even played a little and I finally got a couple of smiles (it had been way too long). I hope that was a sign that the worst is over.
Still no talk about when we will go home.

Longer Hospital Stay

Logan is getting worse, so we will be at the hospital for atleast a couple more days. He is on oxygen all of the time now and is needing to be suctioned every few hours, and the suctioning isn't getting any easier to watch. He just seems even more miserable now and he's either sleeping or crying. I haven't gotten much sleep with his oxygen alarm going off all of the time, but tonight they plan on keeping him more comfortable with more oxygen so hopefully we will both sleep well for the first time since last Thursday!

Logan: Hospital Update

We are still here...the doctors think that Logan has not reached the peak of the RSV yet since he only started showing symptoms on Thursday night. He didn't need oxygen last night and his fever is gone, but he is really working hard to breath today. They suctioned his nose and throat by sticking a tube all the way down his throat through his nose (horrible thing to watch) and we will see if that helps him be able to eat and breath more easily. He is also more weezy today. I think they may be right about this getting worse...and I would hate to go all the way home and have to come all the way back.

Edit: We are going to be here tonight...they will evaluate him tomorrow at 8am.

Logan is in the hospital...

...for the second time. Logan had a couple of scary nights and I just couldn't watch him being so uncomfortable anymore. So I took him in this morning and he tested positive for RSV. He was having trouble breathing, had a bad cough and a temp of 104.5. We will be here, at the hospital, for atleast one night or until his oxygen levels are better. They have been dipping into the eighties off and on and this we during the day today, so they may go lower tonight, when RSV can get worse. His ped said that RSV peaks the 5th day or so and tonight will only be the 3rd night. I am just SO glad to not have to worry about him turning blue in the middle of the night. Now we have machines and nurses for that.